Why Support Us

We can help defeat rare cancer as we know it.

Jed’s untimely death at age 39 exemplifies the heartbreak and loss associated with a rare cancer diagnosis.

He lived six short months after his initial diagnosis. By the time doctors realized that Jed had metastatic cancer, after months of treatment for a sports injury, it was too late. This is typical of rare cancers; they don’t present like most common cancers. Even with consultations with doctors in leading cancer centers, Jed’s outlook was bleak. One night a few weeks before he died, after he learned that his latest treatment was ineffective, he asked “What will be my legacy?”

The Jed Ian Taxel Foundation for Rare Cancer Research is his legacy.

A legacy that contributes to the betterment of mankind. A legacy he would want … one not defined by cancer but defined by better outcomes. This foundation is the vehicle to help others from experiencing our heartbreak … This is something we can and must do.

With gratitude and respect,

Mark Taxel, Founder, Father & CEO
JEDI Rare Cancer Foundation

Rare cancer patients and their families need our help.

By fueling breakthroughs in rare cancer, the JEDI community continues to save lives around the world. Your generous donations support crucial rare cancer research and collaboration resulting in scientific breakthroughs, clinical trials and improved treatments that change lives and enable better outcomes for rare cancer patients and their families.

More healthy survivors, less family heartbreak

Your generous donation is an investment in ending rare cancer as we know it.

We accelerate discovery

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Together, we can take action against rare cancer and help save lives.

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The Jed Ian Taxel Foundation for Rare Cancer Research | P.O. Box 683501 Park City, Utah 84068

The Jed Ian Taxel Foundation for Rare Cancer Research, Inc. is a 501 (C)(3) Non-Profit Organization, accepting Tax Deductible donations from individuals, corporations, family-advised funds and foundations. Federal Tax ID 86-2610819

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Subscribe to our Quarterly Updates

Learn about lifesaving rare cancer research, foundation news, events, and discoveries that make a real, measurable difference in the lives of rare cancer patients and their families.