About the Foundation

Our Mission

Jed Taxel died of rare cancer in 2017, six months after his initial diagnosis. The JEDI Rare Cancer Foundation is his legacy. Our mission and sole commitment is to accelerate scientific discovery that will change lives and enable better outcomes for rare cancer patients and their families.

We are investing in science and building a community of systemic support for concerted, collaborative innovation that will accelerate breakthroughs in rare cancer research, catalyze innovation among collaborators, and bring promising therapeutics to patients to defeat rare cancer. This is something we can and must do.

We Accelerate Discovery

Defeating rare cancer requires collaboration and coordination to build a movement that is committed to instituting a systemic community-wide approach to defeat rare cancer as we know it. Together with our medical science and patient advocacy partners, we strive to advance the understanding and treatment of rare forms of cancer.

Our Priorities

We support scientific research, advocacy, and community engagement to make a lasting impact in the field of rare cancer research. We strive to raise awareness, support cutting-edge research initiatives, and accelerate clinical trials of lifesaving treatments for rare cancer patients. By collaborating with other foundations and organizations, we aim to foster synergies and accelerate progress leading to improved outcomes for individuals and their families affected by a challenging rare cancer diagnosis.

Meet Mark Taxel Founder, Father & CEO

More healthy survivors, less family heartbreak

Your generous donation is an investment in ending rare cancer as we know it.

We accelerate discovery

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Learn about lifesaving rare cancer research, foundation news, events, and discoveries that make a real, measurable difference in the lives of rare cancer patients and their families.

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Together, we can take action against rare cancer and help save lives.

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The Jed Ian Taxel Foundation for Rare Cancer Research | P.O. Box 683501 Park City, Utah 84068

The Jed Ian Taxel Foundation for Rare Cancer Research, Inc. is a 501 (C)(3) Non-Profit Organization, accepting Tax Deductible donations from individuals, corporations, family-advised funds and foundations. Federal Tax ID 86-2610819

DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE The information, including but not limited to, text, graphics, images and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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Subscribe to our Quarterly Updates

Learn about lifesaving rare cancer research, foundation news, events, and discoveries that make a real, measurable difference in the lives of rare cancer patients and their families.