About Rare Cancer

Approximately 25% of all cancers diagnosed annually are rare cancers

What is tragically obvious to rare cancer researchers, medical scientists, hospitals, and doctors is widely unknown by the public until they or a loved one is diagnosed with a rare cancer.

Why is it called rare cancer when it’s not rare?

Over 200,000 patients are diagnosed with a rare cancer each year in the U.S. alone and these patients have little hope of a positive outcome. The British Journal of Cancer article “Rare Cancers: the greatest inequality in cancer research and oncology treatment”  emphasizes there is a strong need in the area of rare cancers to start collecting meaningful genomics information to inform better science in the future for therapeutic interventions.

A rare cancer diagnosis is most often a death sentence.

Jed Taxel died 6 months after his initial diagnosis. The 5-year survival rate for rare cancer patients like Jed is much lower than for patients diagnosed with common cancers, and results in a disproportionate number of all cancer deaths.

More healthy survivors, less family heartbreak.

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Together, we will END rare cancer.

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The Jed Ian Taxel Foundation for Rare Cancer Research | P.O. Box 683501 Park City, Utah 84068

The Jed Ian Taxel Foundation for Rare Cancer Research, Inc. is a 501 (C)(3) Non-Profit Organization, accepting Tax Deductible donations from individuals, corporations, family-advised funds and foundations. Federal Tax ID 86-2610819

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Subscribe to our e-News Updates

Learn about lifesaving rare cancer research, foundation news, events, and discoveries that make a real, measurable difference in the lives of rare cancer patients and their families.