Wine for Life
An evening of fine wines and delectables
Friday, OCT. 18, 2024
5:45-7 p.m. VIP Tasting ~ 7-10 p.m. Tasting and Wine “Pull”
Rare cancer comprises approximately 25% of cancers diagnosed annually, yet rare cancer patients and their families have little or no hope of positive outcomes. What is tragically obvious to rare cancer researchers, medical scientists, hospitals, and doctors is widely unknown until a loved one is diagnosed with a rare cancer.
In November 2023, we convened a rare cancer workshop at Case Comprehensive Cancer Center in Cleveland, Ohio. 40 rare cancer academics, patient advocates, rare cancer philanthropies, and government (NCI and FDA) leaders including the former head of Obama’s Cancer Moon Shot convened to examine the issues and opportunities for a systemic approach to defeat rare cancer, resulting in a shared vision for carrying this important mission forward.
by Laura Taxel, commissioned by The Jedi Rare Cancer Foundation
Prior to the workshop, we commissioned “The U.S. Rare Cancer Landscape: A 2023 Report.” Our researcher interviewed multiple experts representing rare cancer constituencies to assess the current state of rare cancer research, identify a consensus of unmet needs, understand the challenges that have prevented progress to date, and identify areas of progress that could form models for a scaled approach to defeat rare cancers.
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The Jed Ian Taxel Foundation for Rare Cancer Research | P.O. Box 683501 Park City, Utah 84068
The Jed Ian Taxel Foundation for Rare Cancer Research, Inc. is a 501 (C)(3) Non-Profit Organization, accepting Tax Deductible donations from individuals, corporations, family-advised funds and foundations. Federal Tax ID 86-2610819
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