Jed Ian Taxel Foundation: Rare Cancer Research Foundation

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Rare cancer patients and their families need our help

Rare cancer is not rare: 1 in 4 are considered a ‘rare cancer.’ The JEDI Rare Cancer Foundation exists to support and advance cutting-edge research that translates into lifesaving treatments that can end rare cancer.

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Announcements

CURE: The Rare Cancer Initiative will bring new hope to cancer patients.

The JEDI Rare Cancer Foundation has committed to raise $5 Million over 5 years to support CURE: The Rare Cancer Initiative. Utilizing groundbreaking single-cell science and analysis, this transformative research leverages the institutional experience and resources present at Cleveland’s Case Comprehensive Cancer Center through a collaborative national effort that will accelerate discovery to defeat rare cancer as we know it and save lives around the world.

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Why is it called rare cancer when it’s not rare

Rare cancer comprises approximately 25% of cancers diagnosed annually, yet rare cancer patients and their families have little or no hope of positive outcomes. What is tragically obvious to rare cancer researchers, medical scientists, hospitals, and doctors is widely unknown until a loved one is diagnosed with a rare cancer.

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Approximately

%

of cancer diagnoses
are considered rare

patients are diagnosed with a rare cancer each year in the U.S. alone

Impact through action and research

Rare Cancer Conference

On April 26, 2022, Columbia University Irving Medical Center and the JEDI Rare Cancer Foundation co-sponsored “Rare Cancers: Unmet Medical Needs.” The conference brought needed attention to the scarce resources and treatment options available to the more than 400,000 Americans diagnosed with a rare cancer each year – and to the major advancements in medical science, emphasizing suggested outcomes that can accelerate discovery and move rare cancer progress forward.

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JEDIs for Survival

Since 2022, the foundation’s JEDIs for Survival teams and generous donors have supported Cycle for Survival’s annual fundraiser. We ride to accelerate progress in rare cancer research and lifesaving clinical trials led by Memorial Sloan Kettering Cancer Center (MSK), bringing new and better treatments to people around the world.

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What will be my legacy?

The Jed Ian Taxel Foundation for Rare Cancer Research was founded in 2021 as a living memorial to Jed, who died in 2017 of a rare cancer. Our mission is to inspire and empower scientific breakthroughs, clinical trials, and improved treatments that change lives and enable better outcomes for rare cancer patients and their families.

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Jed Ian Taxel | January 17, 1978–October 11, 2017

More healthy survivors, less family heartbreak

Your generous donation is an investment in ending rare cancer as we know it.

We accelerate discovery

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The Jed Ian Taxel Foundation for Rare Cancer Research | P.O. Box 683501 Park City, Utah 84068

The Jed Ian Taxel Foundation for Rare Cancer Research, Inc. is a 501 (C)(3) Non-Profit Organization, accepting Tax Deductible donations from individuals, corporations, family-advised funds and foundations. Federal Tax ID 86-2610819

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