2021–2025 Report
In just 4 short years, driven by passionate, talented people and organizations representing medical institutions, academia, philanthropy, and government, our foundation is actively leading a movement dedicated to uniting the entire rare cancer community to accelerate research, treatment, and cures for rare cancers.
Case Comprehensive Cancer Center’s CURE: The Rare Cancer Initiative will transform rare cancer research to bring new hope to cancer patients and save lives around the world.
Thanks to the guidance and generosity of our donor community, the Jedi Rare Cancer Foundation has a key role in supporting rare cancer research.
Rare cancer comprises approximately 25% of cancers diagnosed annually, yet rare cancer patients and their families have little or no hope of positive outcomes. What is tragically obvious to rare cancer researchers, medical scientists, hospitals, and doctors is widely unknown until a loved one is diagnosed with a rare cancer.
In November 2023, we convened a rare cancer workshop at Case Comprehensive Cancer Center in Cleveland, Ohio. 40 rare cancer academics, patient advocates, rare cancer philanthropies, and government (NCI and FDA) leaders including the former head of Obama’s Cancer Moon Shot convened to examine the issues and opportunities for a systemic approach to defeat rare cancer, resulting in a shared vision for carrying this important mission forward.
by Laura Taxel, commissioned by The Jedi Rare Cancer Foundation
Prior to the workshop, we commissioned “The U.S. Rare Cancer Landscape: A 2023 Report.” Our researcher interviewed multiple experts representing rare cancer constituencies to assess the current state of rare cancer research, identify a consensus of unmet needs, understand the challenges that have prevented progress to date, and identify areas of progress that could form models for a scaled approach to defeat rare cancers.
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The Jed Ian Taxel Foundation for Rare Cancer Research | P.O. Box 683501 Park City, Utah 84068
The Jed Ian Taxel Foundation for Rare Cancer Research, Inc. is a 501 (C)(3) Non-Profit Organization, accepting Tax Deductible donations from individuals, corporations, family-advised funds and foundations. Federal Tax ID 86-2610819
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