Our foundation’s rare cancer initiative the Alliance for Rare Cancers, in collaboration with Case Comprehensive Cancer Center and the Rare Cancer Research Foundation, has received a $1M grant from Chan Zuckerberg Initiative’s newly launched Biohub.
Rare cancers are one of the greatest unmet medical needs we face today. We invite you to read the impact your support and actions have made to accelerate research, treatments, and cures for rare cancers.
1 in 4 cancer patients has an incurable rare cancer. We are determined to change that. ARC’s collaborative data generation program is the latest in a number of important research initiatives our donor community has supported.
Rare cancer comprises approximately 25% of cancers diagnosed annually, yet rare cancer patients and their families have little or no hope of positive outcomes. What is tragically obvious to rare cancer researchers, medical scientists, hospitals, and doctors is widely unknown until a loved one is diagnosed with a rare cancer.
In November 2023, we convened a rare cancer workshop at Case Comprehensive Cancer Center in Cleveland, Ohio. 40 rare cancer academics, patient advocates, rare cancer philanthropies, and government (NCI and FDA) leaders including the former head of Obama’s Cancer Moon Shot convened to examine the issues and opportunities for a systemic approach to defeat rare cancer, resulting in a shared vision for carrying this important mission forward.
by Laura Taxel, commissioned by The Jedi Rare Cancer Foundation
Prior to the workshop, we commissioned “The U.S. Rare Cancer Landscape: A 2023 Report.” Our researcher interviewed multiple experts representing rare cancer constituencies to assess the current state of rare cancer research, identify a consensus of unmet needs, understand the challenges that have prevented progress to date, and identify areas of progress that could form models for a scaled approach to defeat rare cancers.
Your generous donation has the power to save lives.
Together, we will END rare cancer.
Comment, Like, Share & Follow Us on Social Media.
Together, we can take action against rare cancer and help save lives.
The Jed Ian Taxel Foundation for Rare Cancer Research | P.O. Box 683501 Park City, Utah 84068
The Jed Ian Taxel Foundation for Rare Cancer Research, Inc. is a 501 (C)(3) Non-Profit Organization, accepting Tax Deductible donations from individuals, corporations, family-advised funds and foundations. Federal Tax ID 86-2610819
DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE The information, including but not limited to, text, graphics, images and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website.