Rare cancer comprises approximately 25% of cancers diagnosed annually, yet rare cancer patients and their families have little or no hope of positive outcomes. What is tragically obvious to rare cancer researchers, medical scientists, hospitals, and doctors is widely unknown until a loved one is diagnosed with a rare cancer.
Jed Taxel died 6 months after his initial diagnosis. The 5-year survival rate for rare cancer patients like Jed is much lower than for patients diagnosed with common cancers, and results in a disproportionate number of all cancer deaths.
The diagnosis and treatment of rare cancers is challenging and oncologists who manage these patients find it difficult to access bona fide experts with meaningful treatment input. A major roadblock in identifying, developing, and evaluating therapies including precision medicine and immunotherapies for rare cancer is that only limited samples are available.
When looking at overall National Cancer Institute (NCI) funding allocations in cancer research, a comparison of spending on cancer research reveals discrepancies in the distribution of research funding, which is primarily focused on “common cancer” forms and fails to sufficiently fund rare cancer research.
That is the mission of the JEDI Rare Cancer Foundation. Innovative science is the only way rare cancer detection and treatment will improve. The foundation’s philanthropy is laser focused to advocate for and empower investigators, physicians, and cancer research institutions’ rare cancer efforts.
By fueling breakthroughs in rare cancer, the JEDI community continues to save lives around the world. Your generous donations support crucial rare cancer research and collaboration resulting in scientific breakthroughs, innovative clinical trials and improved treatments that change lives and enable better outcomes for rare cancer patients and their families.
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The Jed Ian Taxel Foundation for Rare Cancer Research | P.O. Box 683501 Park City, Utah 84068
The Jed Ian Taxel Foundation for Rare Cancer Research, Inc. is a 501 (C)(3) Non-Profit Organization, accepting Tax Deductible donations from individuals, corporations, family-advised funds and foundations. Federal Tax ID 86-2610819
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